Living with rheumatoid arthritis and chronic pain can be an incredibly isolating experience. While medication may help manage the physical pain, it is often the emotional and mental toll that goes unspoken and hurts the most. It can feel disheartening when the support you need is not received, leaving one feeling dismissed and forgotten.
In the midst of dealing with their own busy lives, your friends and loved ones may unintentionally overlook the emotional support needed by someone living with a chronic illness. They may not always be available for to go to brunch or to sit and visit when you feel the need to connect. This can lead to a sense of abandonment and feelings of uselessness and powerlessness.
It is important to remember that despite feeling isolated, you are not alone in this journey. There are support networks and groups available to provide understanding, empathy, and a safe space for you to share your experiences. Online social networks like @MyRA Team myrateam.com, LiveYES! Connect Group connectgroups.arthritis.org sponsored by the Arthritis Foundation, CreakyJoints creekyjoints.org offer virtual and in person activities that help you develop self management skills to not only survive, but thrive. There are smaller organizations that host work shops, empowerment summits and other events but some of those events require you to pay to participate or to travel which can be a hardship for warriors living on a limited income due to disability.
Connecting with a local group of warrior also living with chronic illness can create the opportunities for the in-person social interactions you need, It may take some searching, to find these groups but start with your local chapter of the Arthritis Foundation.
It is important to continue recognize and honor your personal relationships by continuing to reach out to stay connected to your friends and family. Chronic illnesses does change family dynamic and unfortunately relationships can suffer as a result of those changes. Some loved ones never get used to the “strong” or “caring” one now needing care. Some will get “tired” of hearing about your illness and stop calling or hanging out with you as often as before. And if you are a supportive person, this can be the hardest part to understand. However, don’t allow your feelings of abandonment (valid or not) keep you isolated. Harboring the feelings negatively affect your mental health and feelings of well being. No one wants to be alone, all the time.. So, it’s critical to prioritize self-care and seek out those who will reciprocate the emotional support you need.
Your feelings are valid. Seeking professional help such as therapy or counseling can provide valuable tools for coping with the emotional burdens of living with rheumatoid arthritis and chronic pain. Find ways to navigate through your feelings of isolation towards finding joy again.
RA WARRIOR JOY 